11-yr-old boy in Spain lives in permanent shade, can't stay under Sun due to rare condition

An 11-year-old boy named Pol Dominguez lives in permanent shade as he can't stay under the Sun due to a rare condition called Xeroderma Pigmentosum (XP). Even brief exposure to sunlight can cause serious burns to Pol. His home is UV-light-proof with protective film on windows and fans for ventilation.